This site is dedicated to the good, the bad, and the "I really shouldn't laugh at that."
Today we're going to discuss all three, because why not?
So, in December 2015, Kyle had a bilateral derotational osteotomy. This is fancy talk for "the surgeon broke both his legs, turned the bones around, pinned them together, slapped some casts on him, and went on his merry way."
It turns out there's a very small chance that kids with cerebral palsy (Kyle has ataxic CP) will relapse following this surgery.
I took this picture just a couple nights ago. I had noticed, when Kyle was digging for a toy, that his right leg looked a little...funny. But not the good kind of funny. The bad kind of funny that makes you go "Oh dear God, here we go again. Second verse, same as the first." So I had him stand up straight, feet together, legs together, and took a photo.
I sent that photo to my mom, who showed it to my grandparents, and all 3 confirmed they saw the same thing I did: Kyle's leg did indeed, look bowed. Again.
The next morning, I emailed the picture to his orthopedist and called to see if I could get him in. We're working on getting him in ASAP, but right now he's not able to be seen until August.
The doctor agrees, it appears Kyle has relapsed.
Now, a relapse isn't necessarily the end of the world. It feels like it is, but it isn't. We have a visual confirmation that he's likely relapsed, but we need x-rays to see how bad it is and what we need to do about it. In the extreme, Kyle will need ANOTHER surgery.
Because Kyle has, like his mother, terrible anxiety, we discuss the worst case scenarios together so we're prepared. So I sat Kyle down and explained to him what was going on and what might happen.
He cried. He was angry. Because of course he was. Wouldn't you be? I am, and it's not even my leg.
ANYWAYS. Finally, Kyle, being the amazing kid he is, told me that no matter how much he DOES NOT WANT another surgery, if the doctor says he has to do it, he will.
But he has conditions.
One of these conditions is that I am not allowed, now or ever, to recommend that he dress up as Frankenstein for Halloween.
I mean really, how unfair.
Today we're going to discuss all three, because why not?
So, in December 2015, Kyle had a bilateral derotational osteotomy. This is fancy talk for "the surgeon broke both his legs, turned the bones around, pinned them together, slapped some casts on him, and went on his merry way."
It turns out there's a very small chance that kids with cerebral palsy (Kyle has ataxic CP) will relapse following this surgery.
I sent that photo to my mom, who showed it to my grandparents, and all 3 confirmed they saw the same thing I did: Kyle's leg did indeed, look bowed. Again.
The next morning, I emailed the picture to his orthopedist and called to see if I could get him in. We're working on getting him in ASAP, but right now he's not able to be seen until August.
The doctor agrees, it appears Kyle has relapsed.
Now, a relapse isn't necessarily the end of the world. It feels like it is, but it isn't. We have a visual confirmation that he's likely relapsed, but we need x-rays to see how bad it is and what we need to do about it. In the extreme, Kyle will need ANOTHER surgery.
Because Kyle has, like his mother, terrible anxiety, we discuss the worst case scenarios together so we're prepared. So I sat Kyle down and explained to him what was going on and what might happen.
He cried. He was angry. Because of course he was. Wouldn't you be? I am, and it's not even my leg.
ANYWAYS. Finally, Kyle, being the amazing kid he is, told me that no matter how much he DOES NOT WANT another surgery, if the doctor says he has to do it, he will.
But he has conditions.
One of these conditions is that I am not allowed, now or ever, to recommend that he dress up as Frankenstein for Halloween.
I mean really, how unfair.
