Pages

Wednesday, August 30, 2017

Expectations Versus Reality: Inner Reflections of a Special Needs Mom

We have a weekly meeting with a Parenting Expert, whom we shall call J. This meeting usually nets her more knowledge than it does me.


Today, however, she asked me a question and even I was surprised at the answer that popped out.
We were talking about Kyle and his antisocial tendencies. Kyle is the friendliest child with severe social deficits that are usually overlooked by the vast majority of people. J asked me how he does with friends. Kyle...has people he knows who are his own age, but his friends are mostly people my age or older. He doesn't invite friends over. He doesn't ask to go over to friends' houses, and he usually won't make any effort to play with others at the park or anything. J asked me how I feel about that. I was...surprised by my response, although it is a true one. It's simply not one I've given much conscious thought to.


I read a post, a while back, in a Facebook support group for parents of children like Kyle. In its essence, the post talked about how we have to learn to accept, as special needs parents, that our children may not be their happiest doing the things we recall doing. What makes them happy may not at all resemble what we had planned for their lives when they were born.


When Kyle was born, I thought his childhood would resemble mine. I had a best friend who practically lived at our house and vice versa. We're still friends to this day. I was prepared for a gaggle of adolescent boys to come running through my house as he got older. I was prepared for overnight guests and for him to be an overnight guest. I was prepared for pizza parties, Cub Scouts, and gaggles of little boys shrieking through my house.

When Kyle was diagnosed as being on the autism spectrum, I had to accept that a lot of things that I had assumed as a given when I was pregnant with him would not happen the way I thought. As the years have stretched on, I have run into things that I had thought he would do that he cannot or does not do, and I have had to accept, once again, that my vision of his life was not to be.

My house shrieks with the laughter and arguments of little boys, but they are all my little boys. Kyle is in Cub Scouts, because I put him in it, but he is happiest with independent projects.

Kyle has never brought a friend home. The only overnights he's had have been to family members houses or the babysitter's. His closest friends at school are his teachers and the administration staff, who all know him by name and greet him with smiles and high fives.


Part of me, the part that treasures the memories I made with my friends at slumber parties and afternoons spent in each other's homes, mourns for what I can see my son doesn't have. I ache for him to have those memories. I see my friends post photos and stories of their children and their children's friends. I see photos that proudly proclaim "Daughter's First Slumber Party!" and the like, and my heart aches for the experience he doesn't have, and yes, this part of motherhood I have not yet experienced, though I know I likely will with one of my other boys.

The other part of me, the part that knows my son so well, knows that he does not need to have those experiences to have a whole and happy childhood. My expectations do not meet with what my son needs. Kyle needs quiet. He loves building with his Legos on his own. He loves solitary science experiments, and nature walks, and explorations that maybe require Mom's company.

What I wanted and what I thought he would have are nearly the total opposite of what he wants.


In the end, it doesn't matter what I want for his life, or what I expected when I had him. What matters is that he is happy.

And he is.


Wednesday, August 16, 2017

To The Lady Who Called My Crying Toddler Names

Dear Fellow Patient in the Optometrist's Office,

Today, you had an appointment with the eye doctor. I'm sure you weren't looking forward to this - few people enjoy having their eyes dilated and such. I'm sure you weren't expecting the long wait, and you may not have realized this particular Optometrist serves both adults and children, so you might not have expected young children.

I also had to go to the optometrist's office today, though it was for my five year old son. He did great, in case you're wondering. You know who ELSE had to come with us?



This bundle of adorableness! Do you remember us now? No? Let me refresh your memory.

We got to the office at about 10:45. Great! My other child's appointment was at 11:00 - I was early for once! Woo hoo!

You were already there when we got there. I don't know if you were a walk in or if you had a scheduled time and were also made to wait. What I do know is that you were there when we got there.

The King (my sweet baby in the above picture, taken shortly after we arrived at the office today) had been up since 5:30 this morning. He was exhausted, but was being pretty good for the first 20 minutes or so that we were there. The longer we had to wait, though, the more my poor 21 month old boy fell apart.

And he screamed. Because he's a toddler, and just learning to speak understandably, and this is what barely verbal not-quite-two-year olds do: they scream, they cry, and they throw fits.

I tried everything I could in a crowded waiting room to calm him down. I sat with him. I rocked him. I held him. I walked with him. I bounced him. I did everything short of leaving an appointment I couldn't reschedule to get my poor boy to calm down.

And finally, FINALLY, it worked. He'd been sobbing and screaming in spurts for almost an hour and I TOTALLY understand people being irritated by the screaming, fit-throwing 21 month old boy in the crowded waiting room. I even understand people making remarks about it, and I could even understand rude comments coming my way if I hadn't actively been trying to comfort him.

What I, and most of the other patients and staff in the room who heard you, fail to understand is why you, a much older stranger, felt the need to come up to me, once my son had calmed down, look directly at his sweet, exhausted face and say "I see you finally got the bratty little worm to shut up."

Bratty. Little. Worm.

Ma'am, with all due respect and what little compassion I can muster through my own exhausted haze, what in the actual fuck is wrong with you?

I wasn't ignoring my son's cries. I wasn't foisting him off on the staff. I wasn't neglecting my screaming toddler in favor of my smart phone (though admittedly, it did cross my mind at one point). I was literally doing everything I could do at the time to calm him AND HAD SUCCEEDED before you made your comment.

I can understand coming up to me and congratulating an exhausted and stressed out mom on getting her child to calm down. I can understand commenting on how long it took.

I do NOT understand why you would feel the need to call a total stranger's child a bratty little worm.

I don't know if you are so far removed from having young children yourself that you no longer remember how hard it can be. I don't know if you never had children. I don't know if you were just in a bad mood due to the long wait in a crowded waiting room with a screaming child. You could be an angel every other day of the week. You might be one miracle attributed to you away from the Pope declaring you a living saint. I don't know. What I do know is that I will always remember you as the rude older lady who referred to my obviously exhausted toddler as a bratty little worm.

If you're interested, this was what he did almost the moment he got into the car, two hours after our original appointment time:


And you think my adorable boy is a bratty little worm...

Bless your heart.